News & Blog

Year: 2018
Barb Zarnikow presenting on behalf of ICA at the AUA Patient Advocacy Hub

ICA at the 2018 American Urological Association (AUA) Annual Meeting

One of the many things your donations support is IC awareness and education of healthcare providers to help ensure early diagnosis and optimal care for IC patients. That includes ICA’s…

Calling patients with CRPS and/or vulvodynia pain

As you may already know, the Interstitial Cystitis Association is a member of a steering committee of patient advocates advising Grünenthal, a pharmaceutical company that is interested in pain.  One…

Interstitial Cystitis Segment on Lifetime TV

On Tuesday, May 15th, The Balancing Act will be featuring a segment on interstitial cystitis (IC). The show will be aired on Lifetime at the following times: 7:30 am EST…

ICA Attending 2018 American Urological Association (AUA) Annual Meeting

ICA will be participating in the AUA’s Patient Advocacy Hub again this year, which gives us the opportunity to meet and speak with numerous urologists and share the voice of…

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ICA Attends Opioid Summit

At their visit with Representative Karen Handel’s office during the ICA’s Capitol Hill Walk, Irma Rodriguez, ICA Chair and Mike Greenwell, Vice-chair, were invited to an “opioid Summit” In the…

ICA 2018 Capitol Hill Walk

ICA Visits Capitol Hill

ICA board members, staff, patients, and advocates made their annual visits to Capitol Hill on April 24, 2018. ICA’s legislative priorities for FY 2019 include: CENTERS FOR DISEASE CONTROL AND…

Drug Company ‘Shenanigans’ to Block Generics Come Under Federal Scrutiny

“Dr. Scott Gottlieb, the commissioner of the Food and Drug Administration, said recently that drug makers must “end the shenanigans” that prevent competing products from reaching the market.” Read more…

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Doing Harm Book Release

The ICA is featured in the new book Doing Harm about gender bias in the medical system. Check out an excerpt and order today to help generate buzz for this…

Large group of children jumping in the park and having fun.

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