News & Blog

News Updates

Pain Advocacy Groups Tell HHS Secretary Revise CDC Guidelines

A coalition of pain advocacy organizations (including ICA) have written a letter to HHS Secretary Alex M. Azar that analyzes the draft report of the HHS. The public comment period…

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Register for the Walk by April 6th to Get Your Walk Giveaways

Remember to register for the Winston-Salem, NC Walk for an IC Cure before April 6th to ensure you receive the item giveaways at the walk, including a Walk for an…

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Interstitial Cystitis in the News

‘Incurable’ Bladder Pain Brings Women Together to Fight Back  “Where medicine has failed to find a cure, women are banding together using social media to find solutions to interstitial cystitis, a…

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ICA Awareness Video

ICA has created a video entitled “You Have IC, Now What?” that was developed as part of an #ICAwareness campaign. Watch the video at https://www.youtube.com/watch?v=odUvCZaatww&t

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IC & Diet Webinar – Save the Date!

  ICA is excited to announce that we will be hosting a webinar on IC & Diet on Wednesday, March 20, 2019. Speakers will include Dr. Barbara Shorter, RDN, CDN,…

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When the Cure Is Worse Than the Disease

New York Times posted an article on their website entitled “When the Cure Is Worse Than the Disease” that discusses the struggle that many interstitial cystitis patients are facing with…

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Have You Considered Fundraising on Facebook?

Facebook has made birthdays, anniversaries, holidays, and special events a time where friends and family members can recognize you and your IC/BPS journey! Facebook has created a fundraising tool that…

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Lindsay Chandler’s Facebook Fundraiser

Why did Lindsay Sarah Chandler choose ICA for her Facebook Fundraiser? “I chose ICA as a fundraiser since I’ve had IC about two years now, and my IC becoming much…

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IC Hope Research Study

Dr. Laura Santurri and colleagues at the University of Indianapolis are conducting the IC Hope Research Study. This study has been approved by the University of Indianapolis Human Research Protections…

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IC Awareness Walk Coming to North Carolina!

On April 20, 2019, the Interstitial Cystitis Association (ICA) is excited to host our 2nd IC awareness charity walk, ICA: Walk for an IC Cure. The event gathers IC patients,…