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News Updates
Comedy-Night

I.C. A Cure Comedy Night

ICA is grateful for the leadership role Haley Wiscount is taking to raise IC awareness and fundraise for ICA.  Haley has chosen to host a Comedy Night featuring comedian Joe…

Survey

IC and Exercise Survey

ICA is conducting a survey for the next issue of the ICA Update. This survey will focus on IC and exercise and should take approximately 5-10 minutes to complete. Thank…

What Does IC Actually Feel Like?

Check out this video by YouTuber MissM where she talks about what having IC feels like: https://www.youtube.com/watch?v=tgf8qM-TVyI&feature=share Do you have an IC video you would like to share with us?…

Barb Zarnikow presenting on behalf of ICA at the AUA Patient Advocacy Hub

ICA at the 2018 American Urological Association (AUA) Annual Meeting

One of the many things your donations support is IC awareness and education of healthcare providers to help ensure early diagnosis and optimal care for IC patients. That includes ICA’s…

Calling patients with CRPS and/or vulvodynia pain

As you may already know, the Interstitial Cystitis Association is a member of a steering committee of patient advocates advising Grünenthal, a pharmaceutical company that is interested in pain.  One…

Interstitial Cystitis Segment on Lifetime TV

On Tuesday, May 15th, The Balancing Act will be featuring a segment on interstitial cystitis (IC). The show will be aired on Lifetime at the following times: 7:30 am EST…

ICA Attending 2018 American Urological Association (AUA) Annual Meeting

ICA will be participating in the AUA’s Patient Advocacy Hub again this year, which gives us the opportunity to meet and speak with numerous urologists and share the voice of…

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ICA Attends Opioid Summit

At their visit with Representative Karen Handel’s office during the ICA’s Capitol Hill Walk, Irma Rodriguez, ICA Chair and Mike Greenwell, Vice-chair, were invited to an “opioid Summit” In the…

ICA 2018 Capitol Hill Walk

ICA Visits Capitol Hill

ICA board members, staff, patients, and advocates made their annual visits to Capitol Hill on April 24, 2018. ICA’s legislative priorities for FY 2019 include: CENTERS FOR DISEASE CONTROL AND…

Drug Company ‘Shenanigans’ to Block Generics Come Under Federal Scrutiny

“Dr. Scott Gottlieb, the commissioner of the Food and Drug Administration, said recently that drug makers must “end the shenanigans” that prevent competing products from reaching the market.” Read more…